Imagine having to live your life this way? So sad.
Savannah Fulkerson has a rare genetic condition that causes her skin to burn when exposed to the sun. Some would say she is allergic to sun or allergic to sunlight.
Around the time that she turned 4, she became unable to spend any length of time outdoors. “We’d be outside about 20 minutes or so … she’d say, ‘I burn!’” recalls Savannah’s mother Andrea Fulkerson.
If she's in the sun Savannah has been in so much pain where she had “uncontrollable screaming like she got hit by a car.”